Friday, March 15, 2013

Surgery is getting closer...

It's been a while since my last update, and there's lots to tell!

First, we made the transition to the Sibley Heart Center in Atlanta and have met a wonderful cardiologist there, Dr. Kanaan.  He's young, caring, and very knowledgeable about Emily even after meeting her just once.  We spent two hours with him for our first initial visit.  He changed her medicines around a little, adding some medications and upping some other doses.  We feel like we have a mobile pharmacy in our cabinets.  Emily's on 5 different medications right now and it's definitely hard to keep track of dosages and when to give it all. All of this is to be expected as the surgery date comes closer.  We will see the cardiologist again on March 29th and we will schedule surgery then.  It is still expected to be in the middle of April, regardless of weight....which speaking of...is still at 8 pounds.  I am actually hoping it's a little higher at this point because we are now adding even more high-calorie formula to my breast milk in addition to some rice cereal to help pack on the pounds!  Fingers crossed it's all working.  We see the pediatrician next week and will have a weigh in then, so I'll have a better idea if everything is working.

Many people have commented that Emily has grown, but it's definitely harder for us to see since we're looking at her daily.  I'm growing tired of seeing her in the same newborn onsies or jammies on a weekly basis, so a small shopping trip will have to happen very soon.  It is expected that she will lose a little weight after surgery, so she'll probably be in newborn until at least 5 months of age.  I gotta get some new things...if I have to look at the same bunny outfit again, I'm going to burn it!

Emily is definitely developing a little personality and as expected, it's mild and sweet.  She LOVES for people to talk to her, look directly in her eyes, and tickle her feet.  She smiles so much.  She has started to coo a little bit and Lilly almost had her laughing the other day.  Her cries definitely worry Lilly, but being the best big sister, she always tries to soothe her while I'm making a bottle or attempting to get to her myself.  She tells her that mommy is coming and gives her baby kisses.  Melts. my. heart.

Our whole family is moving to Atlanta on March 26th and we are so, so, so excited about it.  We have slowly moved into our new house already and while "home" this past week, we unpacked the entire kitchen, had new furniture and a fridge delivered, and worked hard on hanging pictures, shelves, and random decor.  It's really beginning to look like a home.  Our home in Charleston is very sad looking and we're eating off paper plates.  I'm beginning to stress about it all and on top of everything, our house appraised for less than what it went under contract for.  We are taking a MAJOR hit to the bank account to sell this place, but in the long run, it's better for our family to be in Atlanta with everyone.  It hasn't hit me yet that we're leaving all our "family" and friends here, but it will soon.  I suppose that's because I know we'll be back for visits and our friendships here are forever.

The move may be the hardest on Lilly who will be leaving daycare, her bestie, Elloree, and all her aunties.  She definitely will miss her friends, but I hope to get her in some play groups in Atlanta to make new friends.  I think I'm more sad about her leaving her friends than anything!

Next week we will be very busy trying to pack last minute items and wrap up doctor visits.  Hopefully in the next two weeks, we will have some really good information regarding surgery, expectations, and short term and long term affects and outcomes.  Until then, we are off to enjoy this beautiful weather!

No comments:

Post a Comment